Monday, February 28

12:00PM ET/9:00AM PT

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7:00 PM

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Explore why the most dynamic leaders are building strategies for agile event marketing with a focus on scaling in-person and virtual events that are fast, flexible, and hyper-effective at driving meaningful connections.

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12:00-1:00 PM

Main Event

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Lucy Hernandez

Chief Creative Officer

Openform

Lucy Hernandez is senior director of product marketing at Openform, where her goal is to help people unlock the power of in-person events. Prior to Openform, she led global product marketing teams.

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Rare Disease Treatments: Regulatory and Policy Reform

Relax and relive the moment.

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What was covered

Great power competitors such as China and Russia have increased their military capabilities over the past 20 years, impacting how the U.S. military procures, builds, and deploys critical readiness components.  


In 2018, the U.S. National Defense Strategy, aiming to restore its competitive edge, required streamlined contracting and purchasing processes backed by a secure supply chain.


As technology advances rapidly, how are 21st-century Navy and Marine Corps teams preparing for future threats and crisis response operations? How is the Pentagon procuring, designing and deploying amphibious warships, aircraft, weapons and sensors? How has the pandemic affected the defense industrial base supply chain, and what are defense communities doing to prevent future disruptions?


On March 18, The Hill will convene members of Congress, defense and national security leaders, and more to explore how the Navy and Marine Corps can maintain military readiness domestically and abroad.


Key Topics:

What agile event programs are and why they're essential

Strategies and tools for building agile event marketing

How to scale agile event programs without losing brand integrity or valuable data

Steps you can take right now to introduce agile event marketing into your business

Grab your favorite snack and tune in.

Pro Tip:

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About

Great power competitors such as China and Russia have increased their military capabilities over the past 20 years, impacting how the U.S. military procures, builds, and deploys critical readiness components.  


In 2018, the U.S. National Defense Strategy, aiming to restore its competitive edge, required streamlined contracting and purchasing processes backed by a secure supply chain.


As technology advances rapidly, how are 21st-century Navy and Marine Corps teams preparing for future threats and crisis response operations? How is the Pentagon procuring, designing and deploying amphibious warships, aircraft, weapons and sensors? How has the pandemic affected the defense industrial base supply chain, and what are defense communities doing to prevent future disruptions?


On March 18, The Hill will convene members of Congress, defense and national security leaders, and more to explore how the Navy and Marine Corps can maintain military readiness domestically and abroad.


About


Scientific advances are making new treatments possible for some of the more than 7,000 rare diseases that currently impact one in ten Americans.


Yet, some advocates say current regulatory measures are holding back further progress and lack engagement with rare disease patients and experts. Efforts to change the status quo are ongoing on Capitol Hill. Legislation introduced in Congress seeks to improve protocols for rare diseases therapies, drug review processes and patient access to treatment. 


On World Rare Disease Day, The Hill will convene policymakers, healthcare professionals, researchers, clinicians and patient advocates for a comprehensive discussion about the nuances of regulatory reforms and policy implications for the 30 million Americans living with rare diseases. 


Agenda

(all times Eastern; subject to change)

 


1:00 PM - Interview with Rep. Madeleine Dean (D-PA); Member, Financial Services Committee

 

 

1:10 PM - Interview with Rep. Dan Meuser (R-PA), Member, Committee on Small Business

 

 

1:20 PM - Sponsor Perspective Presented by Wells Fargo

 

 

1:30 PM - Expert Panel with Andrea Custis, President & CEO, Urban League of Philadelphia, Jim Burnett, CEO, VestedIn and Sunny Phanthavong, Chef & Owner, Vientiane Bistro

 

Featuring:

Sarah Bacon

Rare Disease Patient Advocate


Rep. Brett Guthrie

(R-KY)

 

Member

Energy & Commerce Committee

Freda Lewis-Hall

 

Former CMO and Executive Vice President

Pfizer

Kelly Maynard

President & Founder

Little Hercules Foundation

Frank McCormack, MD

Professor of Medicine; Director

Division of Pulmonary, Critical Care, & Sleep Medicine, University of Cincinnati

Mark Skinner

President & CEO

Institute for Policy Advancement

Dr. Wen-Hann Tan

Attending Physician & Associate Professor of Pediatrics 

Division of Genetics and Genomics, Boston Children’s Hospital; Harvard Medical School

Dr. Janet Woodcock

Deputy Principal Commissioner

FDA

Sponsor Perspective:

Del Lebel

Head of US Government Affairs and Policy

Alexion, AstraZeneca Rare Disease

Mike Page

Vice President, Global Regulatory Affairs Development Strategy

Alexion, AstraZeneca Rare Disease

Moderator:

Steve Clemons

Editor-at-Large

The Hill

Your Hosts

Lucy Hernandez

Chief Creative Officer

Openform

Lucy Hernandez is senior director of product marketing at Openform, where her goal is to help people unlock the power of in-person events.

Leo Di Salvo

Sr. Technology Consultant

Openform

Leo Di Salvo is the Senior Technology Consultant at Openform, where his goal is to help people unlock the power of in-person events.

Run of show

12:00PM

Webinar Begins

Opening remarks from your hosts

12:15PM

5-Tips

5 Tips for Creating Virtual Events

12:45PM

Closing

Final remarks from your hosts

Grab your favorite snack and tune in.

Pro Tip:

First, watch the video to learn how to use this type of theme. Then, replace the iFrame embed code of the video below by clicking into it and clicking on the "Embed Options" tab on the right. Hide this element when you're finished.

 
Need more help? Here are some great Help Center articles regarding embed best-practices:

 
How do I resize an iFrame?


What's the difference between iFrame elements and Video elements?


How do I embed webinars or livestreams using an iFrame element?


What can I embed using an iframe into Splash?

Resource List

01

A Guide to Agile Event Programs that Can Survive Anything

Explore why the most dynamic leaders are building strategies for agile event marketing with a focus on scaling in-person and virtual events that are fast, flexible, and hyper-effective at driving meaningful connections.

Download
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02

Crisis Mode: Ideas for Managing Events in Challenging Situations

Learn strategies, experiences and lessons learned from top event marketing leaders who have walked through the fire more than once and lived to talk about it.

Register
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03

How to Build a Rock Solid Agile Events Program

The old way of doing event marketing—a large, inflexible investment in a small number of tentpole events—doesn't fit into a business world that demands adaptability and speed.

Watch now
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SPONSORED BY: 


Join the conversation! Tweet us using @TheHillEvents and #TheHillRareDiseases

RSVP
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Lucy Hernandez

Chief Creative Officer

Openform

Lucy Hernandez is senior director of product marketing at Openform, where her goal is to help people unlock the power of in-person events. Prior to Openform, she led global product marketing teams.

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